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The Dylan Earven Foundation  © 2014 - 2017  • All Rights Reserved
Tracie LeiAnne
October 2014

Tracie LeiAnne True only got 7 weeks on this earth.
  But she made a huge impact on her parents, Allyssa Courtney and Christopher True. “It’s been a very tough experience for us,” said Allyssa. “It’s taken its toll. We’re a fairly young couple, so we’re hoping to have another baby.”

Tracie was born with Trisomy 18 (Edwards Syndrome) and passed away on Nov. 29, 2013. During Tracie’s time alive, and all the way through her passing, she and her family received compassionate support from the Dylan Earven Foundation. The Foundation arranged for Allyssa and Christopher to meet with the Globe paramedics, so that the first responders would know what to expect when called to the True home.

“The Foundation helped out a lot with my daughter,” Allyssa said. “They helped with utilities, food, gas, everything. We were making daily trips to the Valley.

“And when she passed, the Foundation even helped us find a church to have her services. I’m very grateful, as is the whole family. We wouldn’t have been able to do it on our own.”
Madison Rose Smith
October 2014


Madison Rose Smith was diagnosed with a Germ Cell Tumor, which formed around her heart. In July of 2012 she was admitted to Phoenix Childrens Hospital, where she would spend the remainder of the month, and return every two weeks to undergo Chemotherapy.

Then in October of that same year, she would undergo open heart surgery to have the tumor removed. During all of this, Madison's family was approached and that’s when they learned about the Dylan Earven Foundation. This foundation helped the family out in any way possible. During that trying time, the people behind the foundation kept in contact with the family and wanted updates on Madison’s condition.

This foundation also had set up fundraisers for the family. And for that the family is extremely grateful and thankful for the Dylan Earven Foundation.   They still keep in contact with us today.

Today Madison is now 5 and is in kindergarten at Charles A Bejarano Elementary School in Miami. She goes for check-ups regulary and so far no signs of cancer have returned.

She is a normal 5-year-old full of energy. But, not a day goes by we don't thank God for keeping our little one safe during that difficult time.

God Bless,
Kylie Smith
Seth Franco
October 2014


Seth Franco suffered an accidental gunshot wound to the head one night in December 2012.
The bullet pierced his brain. Normally, such an occurrence would lead to debilitating injury or death. And at first, things didn’t look very good. “He wasn’t expected to regain his motor skills,” said Seth’s mother, Sandra Wills.

Seth was in a coma for more than a month and spent nearly three months in the hospital after the accident. Slowly but surely, however, Seth began to get better and better. His family received tremendous support from the Dylan Earven Foundation, which among other things held several fundraisers.

“I don’t know how we would have survived without the Foundation,” Wills said. “I honestly don’t. The support we’ve gotten is so greatly appreciated. We helped out with last year’s 5K, and we help out where we can. We want to give back, because they were there for us.”

These days, Seth is back in school part time. He is partially blind in his right eye, but all things considered it’s hard to see how he could be doing any better.

“Seth was a straight ‘A’ student before, so that’s been hard for him to adjust to,” Wills said. “But physically he’s doing great. He’s my complete little miracle."
Madisyn Paige King
September 2015


Madisyn Paige King was diagnosed with Renal Artery Stenosis at 19 months old on July 22, 2015.

On July 17, 2015 she was taken to Phoenix Children’s Hospital, and was admitted. That’s when the journey all began. It took 5 days before they knew what was causing her extremely high blood pressure. They did an angiogram of her kidneys and found that there was a narrowing in the artery. Her left kidney had very little blood flow going into it. They told us our options and said the best option would be to remove it.

While we were in the hospital, Madisyn developed three blood clots. The first was in her right arm which was caused by the picc line. The second was in her left leg which is where they placed the second picc line, but both of these were just in the vein so they didn’t seem too worried. Unfortunately, the third one formed in her femoral artery where they went in with the arterial line and the angiogram. Both were done in her groin and that is where the blood clot formed. After they found the clot in the artery they put her on an IV drip and another medication to break up the clot. Her leg and arm swelled up and she was in so much pain.
Fast forward 19 days and we are finally being discharged to go home. We have to follow up every week at the hospital for blood work. She has to take 8 different blood pressure medications every 6 hours, along with blood thinner shots in her belly every 12 hours. Her blood pressure has to be taken every four hours, including through the night hours. Blood clots in children are not very common so they do not know the length of time she will need to stay on the blood thinners. The doctors plan to keep her on these medications for 12 weeks, which is the length of time they treat adults. After this 12 week period, they are wanting to remove the kidney. This timeline will take us into the middle of November, but my hope is that they will allow us to move the surgery up six weeks so that Madi does not have to be in the hospital during the holidays.

Miss Madisyn has been through so much in such a short amount of time. She is slowly coming back to the happy baby she was before all of this started. There is a chance that after the surgery she won’t need any of the medications and that is what we are hoping for. She loves to dance around the room when music comes on. Hopefully, in January we can sign her up for dance classes and she will be able to show off her spunky attitude on stage for all to see.

Ashley King, Madisyn’s Mother
Meet some of the families the Foundation has helped
Allison Wagner
September 2015


My daughter, Allison Wagner was hurt on December 4, 2014.

On July 17, 2015 she was taken to Phoenix Children’s Hospital, and was admitted. That’s when the journey all began. It took 5 days before they knew what was causing her extremely high blood pressure. They did an angiogram of her kidneys and found that there was a narrowing in the artery. Her left kidney had very little blood flow going into it. They told us our options and said the best option would be to remove it.

While we were in the hospital, Madisyn developed three blood clots. The first was in her right arm which was caused by the picc line. The second was in her left leg which is where they placed the second picc line, but both of these were just in the vein so they didn’t seem too worried. Unfortunately, the third one formed in her femoral artery where they went in with the arterial line and the angiogram. Both were done in her groin and that is where the blood clot formed. After they found the clot in the artery they put her on an IV drip and another medication to break up the clot. Her leg and arm swelled up and she was in so much pain.

Fast forward 19 days and we are finally being discharged to go home. We have to follow up every week at the hospital for blood work. She has to take 8 different blood pressure medications every 6 hours, along with blood thinner shots in her belly every 12 hours. Her blood pressure has to be taken every four hours, including through the night hours. Blood clots in children are not very common so they do not know the length of time she will need to stay on the blood thinners. The doctors plan to keep her on these medications for 12 weeks, which is the length of time they treat adults. After this 12 week period, they are wanting to remove the kidney. This timeline will take us into the middle of November, but my hope is that they will allow us to move the surgery up six weeks so that Madi does not have to be in the hospital during the holidays.

Miss Madisyn has been through so much in such a short amount of time. She is slowly coming back to the happy baby she was before all of this started. There is a chance that after the surgery she won’t need any of the medications and that is what we are hoping for. She loves to dance around the room when music comes on. Hopefully, in January we can sign her up for dance classes and she will be able to show off her spunky attitude on stage for all to see.

Ashley King, Madisyn’s Mother
Update on Marison Perez
September 2015

Marisol “TeeTee” Perez was diagnosed on October 22, 2013 with Acute Lymphoblastic Leukemia.

Marisol was treated aggressively with chemotherapy and brain radiation. Twenty months of treatment have gone by and Marisol is now in remission. She continues with chemo at home and once a month in clinic. Our family has come across some bumps in the road financially, but the Dylan Earven Foundation has helped us in so many ways. I feel that the surrounding communities need to be advised of the compassion, kindness and love that this foundation has to offer.

A day does not pass without Angela checking on Marisol. The concern and love means so much to our family, we can’t thank the foundation enough.

Cancer is a big issue all around the world. I can affect the young and old, active or inactive. They Dylan Earven Foundation does not only promote helping families, but the awareness of childhood cancer and educating the communities of this deadly disease.

We thank God every day for bringing the foundation into our lives and allowing us to take care of Marisol.
Julie Otero, Marisol’s Mother
Marison Perez
October 2014


Marisol Perez, 5 years old, was diagnosed with T-cell Acute Lymphoblastic Leukemia on Oct. 22, 2013.
Our lives changed forever on that day. It has been 10 months and Marisol’s last chemotherapy day is scheduled for July 2016. I remember standing in the emergency room and repeating the word “cancer” over and over. The guilt was starting to settle in and the tears would not stop.

How did I not know? How long was the cancer in her little body? So many questions racing through my mind. Childhood Cancer is a disease that everyone needs to know about. Sharing Marisol’s journey is very difficult to speak about but the information needs to be out there for other parents to be aware.

The biggest part of this life-changing journey is the help. Our family is grateful to the Dylan Earven Foundation. You think that you can take care of everything, but in reality you can’t. We honestly do not know where we would be without Dylan’s parents and the wonderful members of the foundation.

This is a timeline of the life-changing days we experienced last October.
• Oct. 17, 2013: bruising on Marisol’s legs
• Oct. 18, 2013: Marisol started complaining that she was tired and was wanting to take naps on her own.
• Oct. 19, 2013: I noticed little red spots all over her body. My mom told me that the spots looked like little broken blood vessels but I was convinced she had measles.
• Oct. 20, 2013: Marisol’s nose was bleeding. She would walking from couch to the kitchen and her nose would bleed. That evening she was holding her tummy cause she had a tummy ache.
• Oct. 21, 2013: Called Blaine Jensen, P.A, and he took her in. My thought was low iron. Blaine ordered blood work on Marisol.
• Oct. 22, 2013: I stopped at the clinic on my way to work because Marisol had a nose bleed all night. I was directed to a room and that was the first time I heard Leukemia. Marisol was rushed to Phoenix Childrens Hospital.
Julie Oteros, mom of Marisol Perez
Luke Heft
July 2017


Hi, We’re the Heft family.

In the last year our lives have been flipped upside down, but thanks to the Dylan Earven Foundation we were able to make it through.

Our son Luke is a 3-year-old boy with Hunter’s Syndrome. Hunters Syndrome is a Rare terminal disease with no cure that effects both body and mind. There is only one FDA approved drug that helps manage the symptoms. Unfortunately for luke his body rejected the treatment and it almost ended his life. We decided that the last hope to slow the disease was to have a cord blood transplant. After considering 3 different hospital we decided to have the transplant done at Duke University in Durham North Carolina. Luke was accepted into a clinical trial there where he was the first kid with his disease to receive this treatment. We had to relocate to Durham for 7 months. In those 7 months, we had no income at all but thanks to the Dylan Earven Foundation they helped us stay afloat both with our bills at home and being able to live away from home.
Not only did they help us financially but they supported us emotionally during our journey. Having someone to talk to who understood what we were going through helped us more then they know! They also helped us when we got back home the transition of being back home was hard, but was made possible by these amazing people!

I am happy to report that because of the decision we made to have the cord blood transplant plus the clinical trial stem cell treatment Luke is doing better than he ever has.

I want to thank Angela, Don, everyone with the Foundation, as well as everyone who supports this foundation. Without all of you we wouldn’t have been able to get Luke the help he desperately needed!!